So it's Lupus...
Systemic lupus is a chronic and presently-incurable illness of the immune system, a condition in which the body's defence mechanism begins to attack itself through an excess of antibodies in the blood stream causing inflammation and damage in the joints, muscles and other organs.
The name systemic lupus implies that almost any organ or system within the body might be affected and lupus is perhaps the classical multi-symptom illness, deserving of far greater priority and investigation by the medical community.
Discoid lupus is a condition of the skin alone, and in a very few patients can develop into systemic lupus.
Lupus may be triggered by various means and can present in a bewildering number of ways, even to the extent of mimicking other diseases such as rheumatoid arthritis or multiple sclerosis.
The causes of lupus are not positively known though research has provided evidence implicating heredity, hormones and infections including viruses.
Some 50,000 may have lupus in the UK and 90% of sufferers are female, mainly between the ages of 15 and 55.
With its many symptoms, lupus can often be overlooked by a GP or consultant which may delay final diagnosis and a vital start to necessary treatment which can contain the disease and hopefully limit potential damage to the kidneys, heart, lungs or brain. Those diagnosed usually remain in medical care and receive ongoing treatment. Many symptoms will have less impact but there may be side effects.
Lupus can adversely affect the lives of sufferers and their families, and influence relationships with friends and business colleagues.
Collections of personal stories have shown us that every patient’s journey through Lupus is different and unpredictable. The symptoms are numerous, but the newly diagnosed patient should remember that they will not get ALL of the symptoms.
Such a complicated illness needs to be managed carefully by the health professionals and also by the patients themselves. The latter is where a support group can help.
We have coffee & chat groups as follows:
Preston - 2nd Wednesday - January, March, May, July, September, November
Lancaster - 1st Wednesday - February, April, June, August, October, December
Southport - 1st Sunday - March, July, November
Bury - 1st Tuesday - monthly
Liverpool - Suspended - please contact us
MRI - Wed 22nd Feb 2019, 10.30am; Wed 12th June 2019, 10.30am Wed 13th Nov 2019, 10.30am
South Cumbria - Not meeting at present, please check back for further details
Oldham - Thu 24th Janusary, Integrated Care Centre, New Radcliffe St, Oldham 1.30pm
Please use the contact form for more information.