Living with Lupus

So it's Lupus...

Systemic lupus is a chronic and presently-incurable illness of the immune system, a condition in which the body's defence mechanism begins to attack itself through an excess of antibodies in the blood stream causing inflammation and damage in the joints, muscles and other organs.

The name systemic lupus implies that almost any organ or system within the body might be affected and lupus is perhaps the classical multi-symptom illness, deserving of far greater priority and investigation by the medical community.

Discoid lupus is a condition of the skin alone, and in a very few patients can develop into systemic lupus.

Lupus may be triggered by various means and can present in a bewildering number of ways, even to the extent of mimicking other diseases such as rheumatoid arthritis or multiple sclerosis.

The causes of lupus are not positively known though research has provided evidence implicating heredity, hormones and infections including viruses.

Some 50,000 may have lupus in the UK and 90% of sufferers are female, mainly between the ages of 15 and 55.

With its many symptoms, lupus can often be overlooked by a GP or consultant which may delay final diagnosis and a vital start to necessary treatment which can contain the disease and hopefully limit potential damage to the kidneys, heart, lungs or brain. Those diagnosed usually remain in medical care and receive ongoing treatment. Many symptoms will have less impact but there may be side effects.

Lupus can adversely affect the lives of sufferers and their families, and influence relationships with friends and business colleagues.

Collections of personal stories have shown us that every patient’s journey through Lupus is different and unpredictable. The symptoms are numerous, but the newly diagnosed patient should remember that they will not get ALL of the symptoms.

Such a complicated illness needs to be managed carefully by the health professionals and also by the patients themselves. The latter is where a support group can help.

Useful info

We have coffee & chat groups as follows:

Preston - 2nd Wednesday - January, March, May, July, September, November

Lancaster - 1st Wednesday - February, April, June, August, October, December

Southport - 1st Sunday - March, July, November

Bury - 1st Tuesday - monthly

Liverpool - Suspended - please contact us

MRI - Wed 22nd Feb 2019, 10.30am; Wed 12th June 2019, 10.30am Wed 13th Nov 2019, 10.30am

South Cumbria - Not meeting at present, please check back for further details

Oldham - Thu 24th Janusary, Integrated Care Centre, New Radcliffe St, Oldham 1.30pm

Please use the contact form for more information.

LATEST NEWS

  • Saturday 15th July, 11.30 till 4

  • Kath's Krafts For Lupus

  • Croftlands Community Centre, Ulverston.

  • Kath’s Krafts for Lupus will be there selling handmade fabric goods to raise funds for Lupus UK. Please pop along and help Kath raise funds and awareness for Lupus UK.

  • contact us

LATEST NEWS

  • Update

  • Bake Sale and Awareness Event

  • The Kellgren Centre for Rheumatology, Manchester Royal Infirmary

  • The bake sale at the Kellgren Centre raised just over £150. Thank you if you popped along an indulged in one of our cakes.

    contact us

COFFEE AND CHAT

We have active coffee and chat groups working in Preston and district, Lancaster, Southport, Bury and South Cumbria. We also have a group meeting occasionally in Oldham.

Details of upcoming Coffee & Chat sessions can be found here. Details of all groups can be found here:

Local Groups Information.

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