North West Lupus Group

Sally Hulse (Chester)

Position: Committee Member

Hello! My name is Sally Hulse and I am 21 years old. I have been on the North West Committee for 3 years and 7 months now. I am originally from Cheshire where I grew up with my parents, Lorraine and Peter, as well as my two older (annoying) bothers. Currently, I am in my fourth year at Coventry University studying Events Management after completing a placement year in HR.

I was diagnosed with Lupus (SLE) in 2013 at the age of 15. I had been poorly for one year before I received my diagnosis which followed shortly after a referral to Alder Hey Hospital. To get a diagnosis at last was a huge relief for me and my family. While not an easy diagnosis to receive, at least then it can be treated appropriately. As I’m sure many of you can relate, I was slightly ‘in denial’ after being diagnosed, therefore, I left all the research to my mum, who found the charity Lupus UK. After attending Lupus UK events, learning more about my body and accepting that Lupus is now a part of me, myself and my parents decided to become part of the committee team.

Finding the right medication for my body and symptoms took some time; however, after finding these, I am pleased to say I have now had a healthy body and a positive mindset regarding my Lupus for almost 6 years.

On commencing my placement, I was worried that a 9-5:30 job (and the stress that comes with it) would have an impact on my Lupus, but I got through the year with no flare-ups. This was a huge deal for me as it shows you can live a ‘normal’ life and achieve the same goals as your peers. I must constantly manage the fatigue that is so common to those of us with Lupus. For example, this means occasionally having to say ‘No thanks’ to a night out with friends, but, in my experience, they will understand.

My main interest is attending the gym on a regular basis. The main reason for this is that I find it helps my mind and makes my body feel stronger. The support I have gained from Lupus UK has been inspiring and I hope I can give the same support to others through my role as a committee member.